History repeats
By Lynn Calvird
On Dec 03, 2010
We moved in with my grandma two weeks before my seventeenth birthday. My mom was determined to take care of her and keep her out of a nursing home. At that time grandma was diagnosed with Parkinson’s disease. I’d never heard of Lewy Body Dementia, but looking back I can see it so clearly. Now, seventeen years later I felt an unexplained dejavu. After five years of being treated for Alzheimer’... Continue Reading »
Gramma Evelyn
By Laurie on Feb 18, 2013
My mother, Evelyn, was recently diagnosed with Lewy Bodies Dementia. She had always been a very independent lady and lived by herself ever since I was married in 1988. She was an Avon Lady for over 3... Continue Reading »
A hard beggining of my life
By Tristan Hancock on Feb 07, 2013
February 2009 My father has been diagnosed with Parkinson's disease. My mom was telling me about all the symptoms of it and what it will cause in the future. I wasn't too worried about it because I didn'... Continue Reading »
what a Journey
By Don Mc Cormick on Nov 21, 2012
Hello, ,My name is Don and I care for my wife of 49 years Irene (Marie). Marie was first diagnosed with Parkinson's in 2004. Then in 2008 they changed it to Lewy Body dementia. As mentioned in other storie... Continue Reading »
The Lewy Body Roller Coaster
By S.B.B. on Jul 18, 2012
My mother - J.E.T - was originally diagnosed with Frontal-temporal Dementia in early 2011, but she has since been diagnosed with Lewy body dementia. However, I have used the word "diagnosed" for lac... Continue Reading »
Daughter/Caregiver
By Althea on Jul 13, 2012
My dad was diagnosed with LBD several years ago. It's hard to see a once strong, independent, vibrant man slowly deteriorate He's not used to family, friends, and caregivers to help him with basic tasks... Continue Reading »
undetected causes
By Darrell Sekin on Jul 10, 2012
A note from LBDA: One caregiving topic that isn’t addressed often in LBD is quality oral care. Infections and pain can worsen behavioral problems, so good dental hygiene and care is part of providin... Continue Reading »
Racing Toward a Miracle
By Jim Haugen on Jul 10, 2012
Racing Toward a Miracle I look for a lost piece of paper in my messy den, Happen across an envelope of pictures, A hiking trip to Banff five years previous, Rush downstairs to reminisce with my wife... Continue Reading »
Making a Difference
By edith kaplan on Jun 17, 2012
In 2008, my husband suspected memory loss. I took care of him until a doctor insisted he take risperidone. Two days later he collapsed and went to hospital. That was his last day home. One psychiatris... Continue Reading »
An epiphany
By Lisa Cooke on Jun 15, 2012
We just returned from the Cleveland Clinic. My husband's meds weren't changed, which is a good thing. Anytime they don't need to increase anything, I always figure that's good. While making the 5 hou... Continue Reading »
Take 2
By Lynn Calvird on Jun 05, 2012
We moved in with my grandma two weeks before my seventeenth birthday. My mom was determined to take care of her and keep her out of a nursing home. At that time grandma was diagnosed with Parkinson’... Continue Reading »
Lewy Body Unknown for Years
By JoAnn Doyle on Apr 24, 2012
Lewy Body Unknown for Years Our father had Lewy Body Dementia for at least 6 years without us realizing what was wrong. We thought his symptoms were just from normal aging since this all began whe... Continue Reading »
Most Amazing, Wife, Mom, Grandma
By Lynette Landherr on Feb 16, 2012
Grandma's Last Fight A face that is always on my mind, A smile I have seen a million times, Two eyes that would light up the sky at night, Until that last battle you could not fight, The day wa... Continue Reading »
My Dad - Herb
By Val on Sep 21, 2011
Dad was such fun, even the Lewy Body dementia didn't take that sparkle from his eye right up until near the end. He passed away January 10, 2011. It was a slow progression, almost seven years from it'... Continue Reading »
August 6th
By Joanne G. Gorney on Aug 25, 2011
August 6th, 2011 Happy Birthday dear Dad Today a party was to be planned Food, family and friends Laughter, memories and stories You were to turn 75 years old Your life is what we were to celebrate Unfortunatel... Continue Reading »
Living With Lewy
By Janet Colello on Aug 16, 2011
As with many, my husband, Jim, was diagnosed first with Parkinson's in 1996 by his neurologist. Jim lived a fairly normal life except for falling a lot and he could still play golf, his passion. He practice... Continue Reading »
A Poem
By R. Hollis on Aug 06, 2011
My partner was diagnosed with Lewy Body this year(2011) in April. The rapid decline in his health and abilities have changed my life. Here is a short poem I wrote for him last night as I was reflectin... Continue Reading »
split personalities
By betty clemens on Aug 06, 2011
My husband and I were both suffering from Post Traumatic Syndrome when we lost our home in Katrina. We moved from New Orleans to Knoxville to be near our daughter. Then, in 2006, his symptoms were diagnose... Continue Reading »
what have you done with my mom
By tammy Croft on Aug 05, 2011
My mother was diagnosed with Lewy Body in 2006. It is horrible. I don't think I can describe everything that I feel. My mom no longer recognizes me. I feel I lost her sometime ago The anger outburs... Continue Reading »
August 6th, 2011
By Joanne on Aug 05, 2011
August 6th, 2011 Happy Birthday dear Dad Today a party was to be planned Food, family and friends Laughter, memories and stories You were to turn 75 years old Your life is what we were to celebrate Unfortunatel... Continue Reading »
From planning a wedding to a funeral?
By allison on Aug 05, 2011
My fiance who is 63 was diagnosed with Parkinsons months ago. I noticed memory problems, simple things he couldn't remember how to do. Then one night he saw "people" in our house, lots of them. Fro... Continue Reading »
When Did This All Happen?
By Diane on May 17, 2011
I sit and think, "How did we get here?".... I'm 21 now, my dad, 79 was diagnosed with LBD about 8 years ago. It started off with missing a step here and there, losing direction, forgetting a name - bu... Continue Reading »
An Open Letter to My Loved One's Doctor
By Richard Mueller on Apr 02, 2011
Dear Doctor: My loved one was brought to your hospital because of a fall. During the course of his examination you discovered that he had walking pneumonia and admitted him to the hospital. Becaus... Continue Reading »
A Good, Clean, Healthy Life & then...
By Joan Gillespie on Mar 25, 2011
My wonderful husband was a high school track & football athlete. Served 3 yrs in the US Army, fathered 3 healthy children, loved Canadian cold water fishing & camping, didn't smoke or drink (a beer occasionally)... Continue Reading »
Daughter
By shelley hulton on Feb 17, 2011
On 2/11/11 my dad was brought to the hospital after a fall in the shower. After his wife noticed "jibberish" speech and recalling his orthostatic hypotension that had been occuring for several months an... Continue Reading »
This is not how I pictured it at 26
By Carrie on Dec 12, 2010
Mom was initially diagnosed with Alzheimers almost two years ago in February 2009. She was 63. I was 24 years old and recently engaged. We (my Dad, sister and I)were told to expect a slow steady declin... Continue Reading »
My Journey
By Debra Ouellette on Nov 01, 2010
I just started writting and this is a paragraph of it........ So start with the family doctor we did, he put a consult into a Geriatric Psychiatrist? I kept thinking why geriatric she’s not old enoug... Continue Reading »
In the beginning...before LBDA
By Jan Childress on Oct 11, 2010
THE UNKNOWN - In 2002 my father was diagnosed with Lewy body disease (LBD) at the UC Davis Alzheimer’s Disease Center in Sacramento CA. We had no idea what LBD was at that time and there was littl... Continue Reading »
La segunda infancia cruel
By Janet on Sep 28, 2010
(English version of this story coming shortly...) Mi padre siempre fué un hombre fuerte,autodidacta,luchador,un hombre duro y recto en lo que al resto se refería y muy permisivo con el mismo. Au... Continue Reading »
My Hero
By Trish on Sep 01, 2010
My father was the greatest person I have ever known. He was kind – I can never remember him saying a negative thing about anyone. He was funny – not in the most obvious way, but in the best way imaginable... Continue Reading »
A life without cause is a life without effect
By Coleen Greco on Aug 27, 2010
What do you mean he lost the car? He grew up in that town how could he misplace the car? This was the single biggest incident that had happened to date. The other signs were far less obvious and coul... Continue Reading »
Two Heroes
By Darlene on Aug 24, 2010
My Dad was diagnosed with Lewy Body Dementia in the summer of 2006. Before that, he lived his life on his terms, did things his way. He was smart, self-taught, loved by many and respected by more. Durin... Continue Reading »
Between Yesterday And Tomorrow
By Cleve on Aug 24, 2010
My beautiful wife of 25 years, Kay, was diagnosed with Parkinson's Disease in May, 2006. She was 52 years old at the time but she'd had symptoms for about 2 years before we got the diagnosis. Th... Continue Reading »
My sweet, passive Dad changes
By Sally on Aug 11, 2010
Everyone in town knew my Dad as a sweet, passive man who volunteered, especially with the elderly. About 15 years ago, he began to change; we joked that he was finally getting assertive. Assertive turne... Continue Reading »
Millie was strong right up to the end
By Laraine on Aug 03, 2010
My mother, Millie had Parkinson's for years, and was diagnosed with LBD about 2 years ago. Millie was a very strong woman, having had multiple surgeries (including bypass surgery), cancer, diabetes an... Continue Reading »
Who is Bill?
By Jean Maas on Jul 28, 2010
Who is Bill? There were many times during the last year of Bill’s life that I asked myself that question. The wonderful, kind, loving man that I had married 12 years earlier was vanishing bit b... Continue Reading »
He taught me all he knew because...
By Nancy on Jul 28, 2010
Dad called me one day to help him put the bag on the lawnmower. He said he taught me all he knew so I could reteach him when he got old. At the time we laughed. I went home with tears streaming down m... Continue Reading »
For Love of the Game
By Shana Gibbs on Jul 26, 2010
My mother and I walked down the halls of the assisted living home. She turns to me and mustered up the words any five year old would, “What time is your mom coming to get you?”. For years, I battle... Continue Reading »
The dog was a Capgras* victim!!
By Victoria on Jul 16, 2010
Oh! The light has shed! Early on in the journey, my mother had frantically called me from her condo to tell me that the groomer picked up Sophie and never brought her back. This was before we knew ho... Continue Reading »
Letting My Mother Die
By Jason M. Rubin on Jul 07, 2010
My mother died in 1999, two days shy of her 66th birthday, after suffering for about 10 years with LBD. Of course, we didn't know it was LBD until very near the end because neither her primary care physicia... Continue Reading »
For Better, For Worse
By Cindy on Mar 02, 2010
When Ted came home from his brother-in-law's funeral several years ago, he told me that he wanted us to leave for Europe as soon as possible. His sister's husband was six months from retirement when h... Continue Reading »
My Father
By Amy on Feb 04, 2010
Like my dad, I feel that I too have the disease. I am forever bound to Lewy Body Disease... Continue Reading »
Whom Do I Ask Now?
By Tami on Feb 04, 2010
A number of years ago, a close friend of ours called to let us know that his daughter-in-law had died of breast cancer. His son was left with two young daughters to raise on his own. I’ll never forge... Continue Reading »
Dreaming of Mom
By Elisabeth on Jan 20, 2010
My mother began to lose the core of herself during the last year of her life. I noticed this when she stopped reading, couldn't write her Haiku anymore, couldn't balance the family check book. When Mo... Continue Reading »
Creative Materials
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